Tuesday, December 16, 2008

Craniofacial team appointment


Well..where to begin? Julia had her first craniofacial team meeting today and Lee and I think it went pretty well. Dr. van Aalst, her plastic surgeon, is very pleased with how her lip is healing and so are we. He spoke with us about her upcoming palate surgery and what to expect. She will be in the hospital for atleast one night and will keep those wonderful "no-no's" on for 2 weeks!!! The recovery for the surgery is going to be a challenge for a 10 month old. No bottles and she can't have anything thicker than stage 2 baby food for a month. Oh well..... we will deal with it! Next we spoke with a social worker and she was wonderful. She gave us some wonderful information to help us get Julia off of the bottle before her palate surgery, which she must be off or the surgery will not happen. Then we saw speech and they said they would re-evaluate her after her surgery to see what type of therapy she will need. We also saw an oral maxillofacial surgeon and we will not need a bone graph until she is around 6 years of age. She saw a pediatric dentist and they just looked in her mouth.....they didn't say much. We also met with ENT and went over her recent ear infections and we all agreed that she needs tubes. They will put those in when she has her palate surgery in Feb. The doctor informed us that she may need 2 or 3 sets of tubes, we will just have to wait and see. We are all a little tired, but I think she did GREAT! We will keep you updated on her progress. Happy Holidays!