Thursday, March 5, 2009

Okay... time to update....


Well, Julia' surgery has come and gone and all is good. She was scheduled to have surgery on Feb 18th and after waiting all day they canceled her surgery and sent us home. They had an emergency in the OR and I completely understand.... didn't like it, didn't make it any better... but I understand. SO... we went back on Friday, the 20th for surgery. They took her back around 230pm and ENT put tubes in her ears and Dr. van Aalst took the calcification off of her face... 2 down 1 to go... the soft palate cleft. Well, Dr. van Aalst came out and said there was no cleft in the soft palate! WHAT? I saw it 4 months ago.... are you sure? Well, it is gone... by the grace of God.... is the only explanation, but it is gone. Anyway, she now has what is called a submucous cleft palate. It is easier to research it on google than for me to try to explain it. Basically, there is no open hole in her mouth.. there is a covering over the hole now. Now the obstacle will be her speech. We will work with speech therapy and keep a close eye on her speech development and go from there. Dr. van Aalst said there is a chance she may need a surgery when she is around 4 or 5 to help with her speech, but that is yet to be determined. Isn't this great...no "no-no's"...she can keep her bottle until she turns 1.... she can eat real food.... all the things that would have been taken away from her for at least 6 weeks!!! Plus she is a mad woman on all four.....CRAWLS all over the place!! Take care everyone:)

2 comments:

Shelly said...

God is good and knows the prayers of our heart! This is amazing news and I am so thankful that she is doing so well. I can't wait to see you all!

annafowler said...

Oh my goodness! She's so cute and beautiful! And what a wonderful blessing to have her cleft of the soft palate disappear!! Wow!

Happy Birthday Julia!